“When you hear hoofbeats think of horses, not zebras”

It is a first-person project that speaks to the body with the body. The starting point is the transformation that a rare disease carries out on my immanent.

It is a first-person project, a hybrid between photography and performance that speaks to the body with the body.

The starting point is the transformation that a rare disease carries out

on my immanent.

In the center the body as a stage,

as an intermediary,

as a moving horizon,

as a visible testimony in the invisibility of pain.

The work is based on the concept of photography as a vital experience.

The visual tool allows me to explore the relationships between the disease and the body, between the inexorable and the transcendent, the private and the political.

The performance is to be found in the very act of photographing, an intimate experience that I realize very slowly and with fatigue, as a fundamental part of the process of staging my living.

I reproduce reality as if it was a theater show in which the props are

my helping tools that become part of my daily life on the way; people,

actors who stage concepts, events or moods; water, a fundamental respite

that I look for in every place, because only in the absence of gravity I can go back to moving without pain; finally my body, bulwark of freedom,

protagonist of his own staging.

The title of the project refers to a principle coined by Prof. Theodore

Woodward (University of Maryland), who instructed his interns thus: "When you

hear hoofbeats behind you, think of horses, don't expect to see

a zebra". Zebra, in medical jargon, means arriving at a medical diagnosis

surprisingly rare when a more common explanation is usually more likely.

This principle has been repeated to me over and over again by my doctors, but in this case I'm their zebra.